Jonah Gomez is a beautiful four year old boy. He has Sickle Hemoglobin D disease and Pyruvate Kinase Deficiency. He is the only known person to have both diseases. He also has a heart condition, Supravalvular Pulmonary Stenosis. He has received over 39 blood transfusions in his short life. He needs a transfusion almost every 6 weeks and may need a stem cell transplant.
His mother, Jessica Kasparian Gomez was the student body president at Taylorsville High School in 1990. Together with friends, family and local businesses we hope to raise money to offset their medical bills.
If you have questions or would like more information, please feel free to contact us!
Tami Acord-Nelson Tami.Acord@hotmail.com
Brek Bolton brek_bolton@nlvmail.com
Amy Buchanan albuchanan@stoel.com
Jason Schiers jasonschiers@yahoo.com
Jenn Pomeranz JenPom@msn.com
Jodi Grizzle jodigrizz@hotmail.com
Monday, April 7, 2008
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You can help! Learn more!
- Stem Cell Information Booth
- University of Utah Cord Blood Information Booth
- Bone Marrow Donation/Information Booth
Silent Auction Items
- Parlee hand-built full custom carbon frame and fork. Retail value est $7000.00 from Edge Composites
- 2- 2.0 all carbon fiber forks buyers choice of Aero or Road model Retail Value est $480.00 each from Edge Composites
- 2- Carbon fiber Mountain handlebars Riser or Flat buyers choice Retail value est. $180.00 each from Edge Composites
- 2- Carbon fiber wheelsets buyers choice Road or Mountain. Retail value est. $2500.00 each from Edge Composites
- Park City Penthouse Suite valued at $3800.00
- White gold diamond pendant necklace valued at $800 Courtesy Passey Jewelers
- $500.00 Gift Certificate from Bikers Edge Custom Bikes
- Steve Young framed Jersey and photo authentic autograph courtesey Jesters Jersey valued $500.00
- $500 in Services from Notus Career Management
- "Police" Concert Tickets Courtesy of Clear Channel
- Andrea Hale Dance Classes
- Polished Image Car Detailing valued $400.00
- $400 Teeth Whitening, Exams, and Dental products from Jordan View Dental
- Speed Street Indoor Raceway Passes
- Feature Films for Families Package est value $500.00
- Arbonne International Spa Package
- Life changing success materials featuring Robert Kiyosaki, Jack Canfield and more......
- $50 Gift Certificate from Dominos Pizza
- Deer Valley Ski Passes
- $50 Gift Card to Forever Young Shoes
- Eric C Taylor DJ Extraordinaire for your function a $250 value
- Golf Packages
- Concert Tickets
- Tickets to Wise Guys Comedy Club
- Tio's Mexican Restaurant
- Tennis Package from SportsUniverse.net
- And MUCH, MUCH MORE!
Entertainment Scheduled
- Jazz Bear
- Andrea Hale Dance Studio Performances
- The Laugh Factory
- DJ Eric C Taylor
- Rock Climbing Wall
- Bounce House
- Hula Hoop Contest with Jazz Bear
- Face Painting
- Carnival Games
Thank You to Our Sponsors
- Edge Composites, LLC
- Passey & Son Jewelry
- Talon Printing
- City of Taylorsville Youth Council
- Color Graphics
- Notus Career Management
Want to get INVOLVED?
Would you like to donate items for the silent auction?
Would you like to donate your time?
Please contact us!
Tami.Acord@hotmail.com
Brek_Bolton@nlvmail.com
JodiGrizz@hotmail.com
Would you like to donate your time?
Please contact us!
Tami.Acord@hotmail.com
Brek_Bolton@nlvmail.com
JodiGrizz@hotmail.com